Online Resources
The following
links include resources that we have found helpful. This is by no means
intended to be an exhaustive list of resources – just some that have been
beneficial to PHACT members.
Remember to always check with your own medical provider about information you receive from the internet. National Food Allergy Organizations:
FARE www.foodallergy.org Kids with Food Allergies www.kidswithfoodallergies.org FAACT www.foodallergyawareness.org Other National Food Allergy Related Organizations: |
Local Food Allergy Organizations:
PHACT of Chester County www.PHACTfoodallergy.com FEAST of the Main Line http://www.feastofthemainline.org Kids with Food Allergies (Doylestown) www.kidswithfoodallergies.org Food Allergy Families of Montgomery and Bucks County http://foodallergyfamiliesofmontgomeryandbucks.com/ Chadds Ford School District (Kennett Square) https://action4allergies.weebly.com/ No Nuts Moms Group of West Chester/KOP https://www.facebook.com/groups/nonutsmomswestchesterpa/ |
Resources for School:
NATIONAL:
504 PLANS & other school related resources:
Anaphylaxis and Epinephrine Resources:
Local Psychologists:
Chiara Baxt, Ph.D. (Bio) Pediatric Psychologist at the Children’s Center for OCD and Anxiety
(484) 530-0778, extension 6
Mary Rourke, Ph.D. (Bio) Co-founder & Co-director of Dragonfly Psychological Associates, P.C.
Clinical Psychologist & Certified School Psychologist - Media, PA (484) 440-9740
Books:
Magazines:
Online Misc. Resources:
Food Allergy Music:
Online Food Allergy Friendly Companies:
Remember to read all ingredients and ask questions specific to your child.
Restaurant Information:
Remember, parents are responsible for the well-being of their children. Always check thoroughly any food served in a restaurant.
Navigating the Holidays:
Travel:
EoE (Eosinophilic Esophagitis) and FPIES Information:
NATIONAL:
- CDC Voluntary National Guidelines for Managing Food Allergies in Schools and Early Care and Education Programs
- National Association of School Nurses (NASN) Food Allergy Tool Kit
- National School Board Association (NSBA) Food Allergy information guide
- Downingtown: Wellness Policy
- Great Valley: Policy
- Twin Valley: Policy
504 PLANS & other school related resources:
- Section 504 information from Food Allergy Research & Education (FARE)
- KFA Webinar - Food Allergy School Health Plans: 504 vs IHCP
- Section 504 Plan Outline by Rhonda Riggott Stevens, MA
- Section 504 information from FAACT
- Wright’s Law information and resources for Allergies and Anaphylaxis
- KFA Sample 504 Sections
- Allergy Law Project Resources and information about your rights
Anaphylaxis and Epinephrine Resources:
- Food Allergy Action Plan/Emergency Action Plan (latest version from FARE with updates to Epi Pen administration 8/1/16)
- Anaphylaxis101
- KFA's information about Epinephrine as well as what to do if you can't afford an Epinephrine
- FARE's information about Epinephrine - including videos on how to inject different device types
- Generic epinephrine info
- SPI belt – great for self-carrying epinephrine devices
- Allergy Apparel: Unique wares for kiddos with food allergies
Local Psychologists:
Chiara Baxt, Ph.D. (Bio) Pediatric Psychologist at the Children’s Center for OCD and Anxiety
(484) 530-0778, extension 6
Mary Rourke, Ph.D. (Bio) Co-founder & Co-director of Dragonfly Psychological Associates, P.C.
Clinical Psychologist & Certified School Psychologist - Media, PA (484) 440-9740
Books:
- The Food Allergy Experience, by Ruchi Gupta, MD, MPH and Denise Bunning
- Food Allergies for Dummies by Robert Wood, MD
- Food Allergies: A Complete Guide for Eating When Your Life Depends on It (A Johns Hopkins Press Health Book) by Dr. Scott Sicherer
- Allergic Girl Adventures in Living Well With Food Allergies by Sloane Miller
- Kids With Food Allergies recommended books
Magazines:
Online Misc. Resources:
- AllergyHome.org
- Allergy Moms
- Allergic Child
- Food Allergy Fun
- Cybele Pascal - Allergy Friendly Cooking
- One Spot Allergy Blog
- Mamacado blog
Food Allergy Music:
- Kyle Dine, Food Allergy Musician The website has MANY resources other than music!
Online Food Allergy Friendly Companies:
Remember to read all ingredients and ask questions specific to your child.
- Divvies
- Surf Sweets
- Sunbutter
- En-R-G
- Cherrybrook Kitchen
- Enjoy Life Foods
- Home Free Treats
- Amanda's Own Chocolates
- No Whey Foods
Restaurant Information:
Remember, parents are responsible for the well-being of their children. Always check thoroughly any food served in a restaurant.
- SafeFARE Chef Card
- Servsafe - National Restaurant Association
- Allergy Free Passport
- AllergyEats - Online Guide to Allergy Friendly Restaurants
- Dining Out with Food Allergies from FARE – includes templates for chef cards
Navigating the Holidays:
- KFA Guide (includes recipes too plus tons more)
- FARE Holiday Food Allergy Survival Guide
- Allergic Living: Food Allergy at the Holidays: 12 Ways to Just Say 'No'
- CHOP Food Allergies and the Holidays
- For fun! Kyle Dine 12 Days of an Allergy Free Christmas
Travel:
- Allergic Living Magazine Travel Section
- Check out this 4-page Airline Comparison Chart
- Allergy Safe Travel
- Allergy Free Mouse – Allergy Free Guide to Disney World
EoE (Eosinophilic Esophagitis) and FPIES Information: